Today marks the first time in a long time Daiki is able to leave the hospital. Although it was a test to see if we (as a team) were capable of getting around safely it was a great feeling. We had to be accompanied by a co-coordinator who’s job it was to asses and guide us on safe practice. She did her best to give us some time and space but her presence was bitter sweet. While she reminded us of present dangers she was a welcomed aid/ safety net! We appreciated her hard work.
Daiki was like a giddy child at Christmas; eager to get out and feel the breeze and just be ‘normal’ for a day. When was the last time you were excited to walk out your door?
Our trial run took place at a Shopping plaza accessible by monorail. Although Daiki got breathless and tired after 10min of walking and had to sit down, we had a great time perusing the shops and smiling. We even met an astonishingly clever robot who reminded me I was in Japan (it was sooooo smart and was able to answer all Daiki’s questions! Unless it just thought he was a relative gahaha. Too soon for jokes?).
Throughout the day I couldn’t help feel like a little bodyguard or that I was in Hunger Games; on the lookout all the time. I was armed with the 2 spare batteries which we are required to carry with us at all times and ready to kick the school girls out of the ‘Priority seating’ so Daiki could sit down. As a foreign women in Japan though I have to say I have a great ability at commanding space on public transport; even if the reason is because no one wants to sit by me, haha.
Upon returning to the hospital the co-coordinator told us we passed. Yay. The next test will be going out for the day alone. I am constantly worried about Daiki’s condition and feel a lot of responsibility for his well being, but in time it will get easier. I can’t wait to go out on a date again.
I would be interested to hear from other people with LVAD’s in different countries if they have such trials and tests before being able to leave the hospital. Also your experiences going out in public. Thank you.